Pierre Robin Network

Quincy, IL - 62305

(217) 224-8242

Pierre Robin Network was founded to allow families affected with Pierre Robin Syndrome or Sequence to connect with each other. We support each other through the surgeries and procedures our children undergo and we offer parenting tips and tricks for children with this unique condition. We want to educate parents and professionals about the issues related to PRS. We share experiences and offer one on one support web page bulletin board and an email listserver. We share resources for products not readily available to help babies with their feeding issues. We share our own experiences to help prepare other families for what we have gone through.

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